Charlie Gard has a 10 percent chance of improvement said U.S. doctor

There is a 10 percent chance to improve 11-month-old Charlie Gard’s condition using an experimental therapy said an American doctor. However, doctors at Great Ormond Street Hospital (GOSH), where Charlie is currently on life support, said the baby’s rare genetic disorder and server brain damage was “irreversible, irreparable.” Despite this, a British judge ruled Friday for Dr. Michio Hirano, a neurologist at New York’s Columbia University Medical Center, to examine Charlie in London next week. Hirano is developing an experimental therapy that has already been used on at least one American patient with a similar but less severe mitochondrial disease. He specializes in myopathies and other neuromuscular diseases.

Connie Yates and Chris Gard, pose for photographers as supporters hold a banner, before delivering a petition to Great Ormond Street Hospital, in central London, Britain July 9, 2017. (REUTERS/Peter Nicholls)
Connie Yates and Chris Gard, pose for photographers as supporters hold a banner, before delivering a petition to Great Ormond Street Hospital, in central London, Britain July 9, 2017. (REUTERS/Peter Nicholls)

Charlie was born with mitochondrial DNA depletion syndrome, an extremely rare genetic condition that left him brain damaged and unable to breathe unaided. He cannot open his eyes or move his arms or legs, and his heart, liver, and kidneys are also affected. His doctors said he will die from his illness. Hirano said on Thursday the baby’s MRI scan indicated “disorganization of brain activity and not major structural brain damage.” He added that there was an “11% to 56% change of clinically meaningful improvement” in muscular function with the proposed treatment. The European Court of Human Rights ruled on June 30 that the hospital could discontinue life support to Charlie and he could not be transferred.

A campaigner holds a banner to show support for allowing Charlie Gard to travel to the United States to receive further treatment, outside the High Court in London, Britain, July 10, 2017. (REUTERS/Neil Hall)
A campaigner holds a banner to show support for allowing Charlie Gard to travel to the United States to receive further treatment, outside the High Court in London, July 10, 2017. (REUTERS/Neil Hall)

However, the hospital requested a new hearing to consider “new evidence relating to potential treatment for his condition,” and the case went to the U.K. High Court this week. Doctors at GOSH told the court that their position is unchanged, that every medical treatment option had already been explored, and that any experimental treatment would be unjustified. But his parents have already raised more than $1.7 million to take their son to the United States for experimental treatment.

People campaign to show support for allowing Charlie Gard to travel to the United Stated to receive further treatment, outside the High Court in London, Britain July 13, 2017. (REUTERS/Peter Nicholls)
People campaign to show support for allowing Charlie Gard to travel to the United Stated to receive further treatment, outside the High Court in London, U.K. July 13, 2017. (REUTERS/Peter Nicholls)

Hirano will also be meeting with the doctors and others who have been caring for Charlie. The High Court will then consider the information Hirano provides and determine a decision by July 25. Donald Trump also welcomed Charlie to the United States with a tweet earlier this month.

 
 
 

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