Imagine having to fall 100 times or more every single day. How difficult would life be? Unfortunately, this 2-year-old girl is battling a rare condition that makes her suffer just that.
Kate Gulo from Illinois grew up like any other toddler before the disorder; she learned to walk at the age of 1. But just six months later, she began to experience trouble with her legs—she stopped standing, crawling and sitting, and fell multiple times every single day.
Suddenly, a child who could run and jump found herself unable to even stand or walk properly. Kate also started suffering from extreme temper tantrums, jittery hands, and insomnia. It caused her to throw temper tantrums that were “20 times worse” than a normal one.
After taking Kate to a doctor, the condition was dismissed as a case of an ear infection that would be resolved soon. But Kate’s troubles did not stop there, and she started to have more difficulty walking.
Even after taking Kate to a second doctor, her condition did not improve and the parents, Teresa and Kenny Gulo, began to worry whether their child would have to suffer this disability all through her life.
“We didn’t feel we could take her anywhere. She could hit her face on the corners of tables and was falling 50 to 100 times a day. It was constant. It was devastating not having any answers,” Teresa said, reports MailOnline.
Fortunately for Kate, her parents decided to consult a third doctor. And it was then that she was diagnosed with the correct medical condition—opsoclonus myoclonus syndrome (OMS).
Estimated to affect just 1 in 10 million people each year, OMS causes involuntary muscle movements and other issues like speech impairment, rapid eye movement, etc.
Kate was soon put on an immunosuppression treatment and thankfully began to take her first steps without falling down. Soon, she began to move just like any child her age would.
“Now she is walking and jumping and running, pretty much like a normal 2-year-old … It feels like the doctors saved her life and ours too,” said Teresa.
Kate is continuing treatment.
“We don’t know what the future holds but we will keep fighting this with our little ‘SuperKate.’”
Kate can be supported on a GoFundMe page set up by her mother, Teresa.